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Invisibly Ill Fox

Living with ME/CFS, POTS, endometriosis, and hashimoto’s.

I stood up to NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.

Author’s note: I left this article in the form it was in when I last edited it on March 6, 2020. I didn’t post it immediately because I wanted to take time to edit it and get it exactly how I wanted it, which is very difficult with my ME/CFS symptoms. It is now moreContinue reading “I stood up to NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.”

Coronavirus & Marginalized Communities: We shouldn’t have to beg for you to care about us

This has been a particularly difficult week for me, with the spread of COVID-19 triggering other issues I have had trouble processing. I have actually started to improve with my M.E. symptoms and was feeling optimistic that maybe I could progress to being a mild case again, rather than being mostly housebound with moderate M.E.Continue reading “Coronavirus & Marginalized Communities: We shouldn’t have to beg for you to care about us”

Becoming a Wheelchair User

I am very proud and excited to introduce Wilma! My new, custom wheelchair. Realizing I needed a mobility aid It was quite a long process to get approved or a wheelchair. First, I had to get over my own internalized ableism and the stigma surround wheelchair users and admit that using a wheelchair would beContinue reading “Becoming a Wheelchair User”

About Me

I’m a 31-year-old Maryland girl who loves travel, books, dogs, cats, family, friends, sports and living well.

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