Invisibly Ill Fox
Living with ME/CFS, POTS, endometriosis, and hashimoto’s.
I rescued a baby bat today. Sometimes I wonder if my teenaged or 20-year-old self would recognize the woman I’ve become. I’m so different now in a good way. I have boundaries when it comes to other people, but a seemingly limitless spirituality, and unity with my body and the Earth in ways I didn’tContinue reading “I can’t save the world, but I can save a baby bat.”
One in ten women have endometriosis. It takes an average of 8 – 10 years to be diagnosed if you’re a white woman – longer for BIPOC. It took me 17 years of symptoms and more than 10 years of actively pursuing a diagnosis before I was finally diagnosed with endometriosis December 2019. Every singleContinue reading “It’s time to talk about my EndoBody.”
Many disabled people live with guilt and fear that they are not doing enough. I’m working on this. Every session, my therapist reminds me to stop being so hard on myself. She makes an effort to recognize my actions and tell me that I am doing a lot. Managing my chronic illnesses takes a lotContinue reading “Lies We Tell Ourselves: I’m Not Doing Enough”
I caught a virus. No, not THE virus. But a virus, nonetheless. And I never recovered. I remember when it all began, at the start of a new semester of college. I remember dragging myself out of bed in 2009 to attend an anatomy lab where attendance was mandatory, with the thought, “at least it’sContinue reading “I caught a virus and I never recovered.”
I stood up to NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.
Author’s note: I left this article in the form it was in when I last edited it on March 6, 2020. I didn’t post it immediately because I wanted to take time to edit it and get it exactly how I wanted it, which is very difficult with my ME/CFS symptoms. It is now moreContinue reading “I stood up to NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.”
25 things you can buy on Amazon that make life a little bit easier if you're disabled or chronically ill
25 things you can buy to amazon to make life a little bit easier if you’re disabled or chronically ill – written by someone who is disabled and chronically ill and has purchased and used all of these items!