Invisibly Ill Fox
Living with ME/CFS, POTS, endometriosis, and hashimoto’s.
I caught a virus. No, not THE virus. But a virus, nonetheless. And I never recovered. I remember when it all began, at the start of a new semester of college. I remember dragging myself out of bed in 2009 to attend an anatomy lab where attendance was mandatory, with the thought, “at least it’sContinue reading “I caught a virus and I never recovered.”
I stood up to NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.
Author’s note: I left this article in the form it was in when I last edited it on March 6, 2020. I didn’t post it immediately because I wanted to take time to edit it and get it exactly how I wanted it, which is very difficult with my ME/CFS symptoms. It is now moreContinue reading “I stood up to NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.”
25 things you can buy on Amazon that make life a little bit easier if you're disabled or chronically ill
25 things you can buy to amazon to make life a little bit easier if you’re disabled or chronically ill – written by someone who is disabled and chronically ill and has purchased and used all of these items!
This has been a particularly difficult week for me, with the spread of COVID-19 triggering other issues I have had trouble processing. I have actually started to improve with my M.E. symptoms and was feeling optimistic that maybe I could progress to being a mild case again, rather than being mostly housebound with moderate M.E.Continue reading “Coronavirus & Marginalized Communities: We shouldn’t have to beg for you to care about us”
A guest blog from Lori Madeira, @MECFSWarrior on Instagram and twitter, summarizing Jen Brea’s story recovering from M.E.
I am very proud and excited to introduce Wilma! My new, custom wheelchair. Realizing I needed a mobility aid It was quite a long process to get approved or a wheelchair. First, I had to get over my own internalized ableism and the stigma surround wheelchair users and admit that using a wheelchair would beContinue reading “Becoming a Wheelchair User”