Today is ME/CFS Awareness Day. If you’re healthy, please take some time out of your busy day to read this and learn a little bit about chronic, post-viral illness. This next paragraph is for you. If you have ME/CFS or another post-viral chronic illness, you already know this story too well. Your story probably sounds aContinue reading “#MillionsMissing isn’t for them – it’s for us, it’s for me, it’s for ME”
I rescued a baby bat today. Sometimes I wonder if my teenaged or 20-year-old self would recognize the woman I’ve become. I’m so different now in a good way. I have boundaries when it comes to other people, but a seemingly limitless spirituality, and unity with my body and the Earth in ways I didn’tContinue reading “I can’t save the world, but I can save a baby bat.”
One in ten women have endometriosis. It takes an average of 8 – 10 years to be diagnosed if you’re a white woman – longer for BIPOC. It took me 17 years of symptoms and more than 10 years of actively pursuing a diagnosis before I was finally diagnosed with endometriosis December 2019. Every singleContinue reading “It’s time to talk about my EndoBody.”
Many disabled people live with guilt and fear that they are not doing enough. I’m working on this. Every session, my therapist reminds me to stop being so hard on myself. She makes an effort to recognize my actions and tell me that I am doing a lot. Managing my chronic illnesses takes a lotContinue reading “Lies We Tell Ourselves: I’m Not Doing Enough”
I caught a virus. No, not THE virus. But a virus, nonetheless. And I never recovered. I remember when it all began, at the start of a new semester of college. I remember dragging myself out of bed in 2009 to attend an anatomy lab where attendance was mandatory, with the thought, “at least it’sContinue reading “I caught a virus and I never recovered.”
Author’s note: I left this article in the form it was in when I last edited it on March 6, 2020. I didn’t post it immediately because I wanted to take time to edit it and get it exactly how I wanted it, which is very difficult with my ME/CFS symptoms. It is now moreContinue reading “I confronted NIH Director Dr. Collins to demand that he stop ignoring ME/CFS. The result? I was ignored.”
25 things you can buy to amazon to make life a little bit easier if you’re disabled or chronically ill – written by someone who is disabled and chronically ill and has purchased and used all of these items!
This has been a particularly difficult week for me, with the spread of COVID-19 triggering other issues I have had trouble processing. I have actually started to improve with my M.E. symptoms and was feeling optimistic that maybe I could progress to being a mild case again, rather than being mostly housebound with moderate M.E.Continue reading “Coronavirus & Marginalized Communities: We shouldn’t have to beg for you to care about us”
A guest blog from Lori Madeira, @MECFSWarrior on Instagram and twitter, summarizing Jen Brea’s story recovering from M.E.
I am very proud and excited to introduce Wilma! My new, custom wheelchair. Realizing I needed a mobility aid It was quite a long process to get approved or a wheelchair. First, I had to get over my own internalized ableism and the stigma surround wheelchair users and admit that using a wheelchair would beContinue reading “Becoming a Wheelchair User”