25 things you can buy on Amazon that make life a little bit easier if you're disabled or chronically ill

25 things you can buy to amazon to make life a little bit easier if you’re disabled or chronically ill – written by someone who is disabled and chronically ill and has purchased and used all of these items!

Believe Patients!

Too often I see videos of my chronically ill friends crying in the car after leaving a doctors appointment, frustrated, angry, upset, and hopeless because they were ignored and invalidated yet again. I love that they show the raw reality of what often happens when you have chronic illness but I hate that we haveContinue reading “Believe Patients!”

An Open Letter to Dr. Koroshetz – The NIH Response is #NotEnough4ME

I have myalgic encephalomyelitis, more easily known as ME. Dr. Koroshetz – this is my response to your letter to ME action regarding the NIH’s failure to provide real, meaningful funding and action for ME. The NIH is failing people with ME. Your response to ME Action’s demands isn’t enough. I used to work inContinue reading “An Open Letter to Dr. Koroshetz – The NIH Response is #NotEnough4ME”

In My Head – How Dumbledore Helped Me Accept Chronic Illness

Is my chronic illness in my head or is it real? Like Dumbledore tells Harry, it’s happening in your head, but why on earth should that mean it is not real?

In My Head – How Dumbledore Helped Me Accept Chronic Illness

Is my chronic illness in my head or is it real? Like Dumbledore tells Harry, it’s happening in your head, but why on earth should that mean it is not real?

An Introduction to ME and me!

My name is Whitney Fox. I have myalgic encephalomyelitis and I want to talk about it.   It’s a big word. It’s difficult to understand, whether I’m trying to pronounce it or manage it. I just think, myalgic enceph≈≈≈≈≈≈≈≈≈itis. It’s myalgic encephƣƪƱɯˠɝɭȋʧϨ. For now, we’ll call it ME. That’s “em – ee,” the first letterContinue reading “An Introduction to ME and me!”