25 things you can buy to amazon to make life a little bit easier if you’re disabled or chronically ill – written by someone who is disabled and chronically ill and has purchased and used all of these items!
Too often I see videos of my chronically ill friends crying in the car after leaving a doctors appointment, frustrated, angry, upset, and hopeless because they were ignored and invalidated yet again. I love that they show the raw reality of what often happens when you have chronic illness but I hate that we haveContinue reading “Believe Patients!”
I have myalgic encephalomyelitis, more easily known as ME. Dr. Koroshetz – this is my response to your letter to ME action regarding the NIH’s failure to provide real, meaningful funding and action for ME. The NIH is failing people with ME. Your response to ME Action’s demands isn’t enough. I used to work inContinue reading “An Open Letter to Dr. Koroshetz – The NIH Response is #NotEnough4ME”