An Open Letter to Dr. Koroshetz – The NIH Response is #NotEnough4ME

I have myalgic encephalomyelitis, more easily known as ME. Dr. Koroshetz – this is my response to your letter to ME action regarding the NIH’s failure to provide real, meaningful funding and action for ME. The NIH is failing people with ME. Your response to ME Action’s demands isn’t enough. I used to work inContinue reading “An Open Letter to Dr. Koroshetz – The NIH Response is #NotEnough4ME”

In My Head – How Dumbledore Helped Me Accept Chronic Illness

Is my chronic illness in my head or is it real? Like Dumbledore tells Harry, it’s happening in your head, but why on earth should that mean it is not real?

In My Head – How Dumbledore Helped Me Accept Chronic Illness

Is my chronic illness in my head or is it real? Like Dumbledore tells Harry, it’s happening in your head, but why on earth should that mean it is not real?

An Introduction to ME and me!

My name is Whitney Fox. I have myalgic encephalomyelitis and I want to talk about it.   It’s a big word. It’s difficult to understand, whether I’m trying to pronounce it or manage it. I just think, myalgic enceph≈≈≈≈≈≈≈≈≈itis. It’s myalgic encephƣƪƱɯˠɝɭȋʧϨ. For now, we’ll call it ME. That’s “em – ee,” the first letterContinue reading “An Introduction to ME and me!”